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ProfessorTomoe

Changing Medications (Level of Trust Required)

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My left knee surgery has been rescheduled...yet again...to April 30th. I forget how many times this makes it now that it's been rescheduled. In the latest snafu, I was supposed to have had a pre-op appointment today (Friday, Apr.12), after which the surgery would be scheduled, so I guess that would have been the equivalent of a rescheduling on its own. However, the pre-op doctor said I couldn't have a pre-op appointment without surgery scheduled first. Go figure. So, I went and got surgery scheduled for the 30th, then got the pre-op scheduled for the 18th of April. Now I'm finally set in the right order, I guess.

Sheesh.

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Here we go, folks. My knee surgery is tomorrow, April 30th. I check in at the ungodly hour of 5:30am CDT. I thought for a brief moment that some right foot pain was going to force the cancellation yet again of my surgery, but no, it turned out to be a simple blister that popped on the bottom of my foot. We've got some silvadene and an island bandage on it now, which should keep it from getting worse.

I'm going to be kept overnight after the surgery is done, so I'll be incommunicado for a little while. Talk to you once I get set up back home.

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Well...ahem. My surgery didn't go exactly as planned. It's Saturday, May 4th, and I'm still in the damned hospital, thanks to what they think is a hematoma in my left knee. They got the idea a couple of days ago when my knee popped open and started bleeding during a Physical Therapy walk. Not just a blood drop down my leg, mind you - this formed a puddle beneath my calf. Needless to say, the Physical Therapy walk came to a screeching halt and we motored back to my room, where they re-wrapped my leg (for a second time - it came unwrapped on an earlier walk as well, but didn't bleed).

I've also been having problems with bladder super-urgency. All of a sudden, I get a humongus urge to urinate, then I must go or else. No options.This has happened anywhere between 5 and 9 times since the surgery, day or night, and the nurses are never fast enough. They're bringing in a kidney specialist to help titrate my Bumex.

I don't know when I'll be home - Monday, perhaps, at the earliest. It could be later. I need all the luck in the world right night now.

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6 hours ago, mlooney said:

That sucks.  Particularly the bladder issue.

I know. I'm kind of getting it under control today by making doubly damned sure the nurses know what's going on. They're ready for it as a result, and they pass it down from one shift to the next, and a reminder from me at shift change is all that's needed in addition.

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Things are moving to resolve my hematoma. I've had an X-ray and an ultrasound to make sure it's not anything else. So, I'm having arthroscopic surgery on it to drain it and clean it plus any other associated gunk Tuesday morning - exactly one week after this whole odyssey began. I just hope it's not the start of another odyssey, unless it's a good one to offset what I (and everyone else) have just been through.

Anyway, I'm NPO after midnight. However, I kind of crashed out around 3:30 PM and didn't wake up until the nurses did their rounds at 7:30 PM, which was 30 minutes after hospital food service closed, so I'm SOL with nothing to eat except for a tiny bit of leftovers unless they'll let me shuffle with the walker down to vending, which is unlikely given my state.

Correction: they had a pre-packaged Turkey & Cheese w/Mayo sandwich and Ruffles and some Vanilla Pudding box at the front desk. All was not lost. :)

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I had my surgery today. Waiting was hell. I was NPO from midnight until 3:30 PM, when I came out. They finally put me under and worked on me, scraping out the hematoma and other gunk as promised, and installed a drain on the leg to keep it from swelling up again. I'm on the same pain management dose I was on before the surgery, so someone forgot something in the promises department. Urgh. It's being worked on.

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On the two-week anniversary of my first knee surgery, it looks like I'm going to get to go home. I think I've been weaned off of the IV Dilaudid successfully, so now all that's got to happen is the drain that got installed has to get removed. I'm a bit concerned about my legs - they've swollen up again, so I'm going to raise that with the doctor tomorrow. Other than that, we shall see.

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I did get to go home on the 14th. However, 2 days later, I was right back in the hospital again. The reason? The bandages were leaking, as was the spot where the drain tube went through the skin and into the knee. My home health nurse saw the leaks, reported them to my surgeon, and got told to tell me to go to the Emergency Room ASAFP. The ER admitted me for overnight observation.

The next day, they redid my bandages, pulled out my vacuum drain, wrapped my left leg in ACE bandages, and sent me home. That was Friday the 17th. Last night, my ACE bandages slipped off, and my regular bandages started leaking. Again.

Sigh.

I called the On-Call Nurse with my Home Health service and talked with her. She eventually arranged for a nurse to come out Sunday morning (the 19th, later today) and redo my wrappings and bandages so that I don't leak anymore. We'll see how long this lasts. I give it 3 hours max before the ACE bandages unravel.

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Yesterday was a rather rotten day. I hit pain level 9+ in my left knee at least two times, if not more, ironically as a result of walking between our car and the offices of doctors I was seeing. Even more ironically, one of the doctors was my pain management doctor.

This was my first real trip out of the house, not counting last Thursday's trip that saw me winding up in the Emergency Room (and subsequently, being admitted into the hospital overnight). I started with a trip to my knee doctor's office. There, nurses and assistants removed my bandages and sutures from my knee, telling me it's now safe for me to shower without any knee coverings. It took them a while to get the stitches out, since swelling had rooted them deeply into my skin.

We had to return to our house afterward in order to have an appointment with my home health nurse. I'd hit 9+ on the way back to the car from the knee doctor's office, and the pain didn't subside much, if at all, on the way home. I was pretty much wiped out throughout the home health appointment.

I only had a few minutes' respite before I had to leave again, this time to go to my pain management doctor's office. Again, cruel irony wins out, since his office now resides within the same building complex as my knee doctor's office. In other words, lots of back-and-forth travel took place today. My pain had subsided below the 9 mark while I was at home, but by the time I pushed my stroller into the doctor's office, it was back above 9 again. During the appointment, I asked for help adjusting my medication for a short while, since the current dosage is obviously not helping right now. Since my appointment was with one of the pain doctor's assistants and not the doctor himself, I'm going to have to wait for an answer on that matter (the doctor was out sick yesterday - cruel irony, you're a real bitch). One should be forthcoming later today.

I don't want to go through another day like that again, obviously. I'll probably have to, though. That's just my rotten luck.

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For the 1st time I've been checking Blood Ox level I had "normal" (98) with normal pulse rate (52).  Hope this keeps up.

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I'm gonna try adding 200 mg of caffeine to my morning drug load to see if it helps with ADHD.  With my 3 mugs of tea that puts me just a little over the FDA recommend max dose.  The bottle of pills was cheap enough that I'll not feel bad if I have to stop taking it.
And yeah, I know what it might do to pulse rate, however caffeine doesn't seem to have a stimulation effect on me mainly do to the ADHD

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I am getting really, really tired of hitting pain level 9 nowadays. Tonight, I hit it internally - in ye olde lower gut. (There's nothing censor-worthy in this post, so I'm not using the spoiler tag. Just proceed at your own risk.)

I've been a bit constipated since getting out of the hospital last Friday, thanks to the Dilaudid IV shots. Overly large amounts of opioids, real or synthetic, will slow down your gut to the point where you can't even pass gas. Well, tonight, someone turned on the gas valve - not all the way, just a little - then backed it off again. Immediately afterward, I started getting intestinal cramps of constantly increasing intensity. They topped pain level 9 real quick. Faster than I've ever had them hit me before. Based on my previous experience with Irritable Bowel Syndrome, I knew I only had one course of treatment available to me: take the maximum dose of Imodium, plus the second-largest dose of simethicone anti-gas medicine, and take it ASAP. I took those, plus my nighttime dose of Dilaudid, around 25 minutes ago, and things are just now beginning to calm down a bit.

ADDENDUM: It's 5 minutes to midnight, and the chemical cocktail has taken control of the pain. I'm still having some gas issues, but I'm no longer suffering from level 9 pain anymore. We'll see how long this lasts.

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I've started to take 200mg of caffiene in the morning in an attempt to make up for my missing adderall. I'm aware that it may make my heart rate faster than normal.

Took my vitals this morning as I always do.  Heart rate was the lowest it's been in several weeks.

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Went to pick up my some of my meds at Walgreens, which didn't have my information on file.  Cost 3 fucking thousand dollars without insurance.  With?  64.  I'm still freaking out over this.

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Which I interpreted to mean "We're bugging Congress for increased funding, because part of the federal budget doesn't pass through our hands yet."

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14 hours ago, ijuin said:

25 to 50% mortality?! That’s like the Black Death all over again.

It seems that this number is based on the first recorded case in humans.  For obvious reasons only the worse cases of a new strain of flu get noticed, so their mortality rate is higher than it would be in the general population.  That being said the Spanish flu had a 10% mortality rate in the general population.

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I'm sitting here with the beginnings of a migraine. Feels like a bag full of hammers rattling around loudly inside my head. I've taken the Qulipta that my doctor gave me. Here's hoping it works.

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I hope the meds work for you.  Migraines suck.  
<google>  Ah, a daily pill.  If I was getting them more often I might look into that.

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Back from the clinic.  On retest blood pressure was normal.  Had a major amount of wax in my left ear  Pulled a chunk about the size of a small pea out.  Ear still has fluid in it from the clean but I can tell it's going to be better.  Proscribed ear drops and refiled my cholesterol meds.  See her again in 3 months, or maybe sooner if my weight keeps dropping.  Need to check it daily now, along with my other vital signs.

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