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      Welcome!   03/05/2016

      Welcome, everyone, to the new 910CMX Community Forums. I'm still working on getting them running, so things may change.  If you're a 910 Comic creator and need your forum recreated, let me know and I'll get on it right away.  I'll do my best to make this new place as fun as the last one!
ProfessorTomoe

Changing Medications (Level of Trust Required)

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One of the things I didn't count on when I went on Lasix was the double misery of extremely frequent urination combined with the gut drama from the pairing of the Augmentin and the hydrocodone. The hydrocodone gives me opiate constipation, but the Augmentin gives me diarrhea. Result: gut blowout.

Translation: something other than my broken bones, my edema, or my back/hip/leg/foot nerve pain is making me smegging miserable right now. Miserable enough to forget about typing a check-in time. It woke me up from a rather deep nap and demanded immediate attention. I've taken care of it, then given it a dose of Imodium afterward.

I had gut blowout on Tuesday night. That was easy enough to deal with. Mix in the Lasix effects and you've got real misery. Mrs. Prof is off doing cat stuff again, so I'm going to try and get some Gatorade tea and go back to sleep while I have the Astros/Rangers game on in the background. Wish me luck. Please.

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2 hours ago, ProfessorTomoe said:

I had gut blowout on Tuesday night. That was easy enough to deal with. Mix in the Lasix effects and you've got real misery. Mrs. Prof is off doing cat stuff again, so I'm going to try and get some Gatorade tea and go back to sleep while I have the Astros/Rangers game on in the background. Wish me luck. Please.

We do. *sigh* Stay strong, old friend. We are rooting for you and Mrs. Prof.

You might be getting some sausage in the mail sometime in the coming week. I took a peek at your wish list and saw one that looked good.

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4 hours ago, The Old Hack said:

We do. *sigh* Stay strong, old friend. We are rooting for you and Mrs. Prof.

You might be getting some sausage in the mail sometime in the coming week. I took a peek at your wish list and saw one that looked good.

Thank you, good friend, thank you indeed, on all counts, from both of us. The sausage will be most appreciated as well. Much obliged.

Only three more days of Lasix to go ...

EDIT: Jesus Christos! That's an equivalent to Mrs. Prof's trail camera. I am very thankful indeed.

You know, if that arrives in time, we can include it in the Texas Motor Speedway IndyCar Watching Party wurstfest along with what I ordered from GermanDeli.com last week. That should be fun, thanks to you!

Edited by ProfessorTomoe
Sausage

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10:41 p.m. CDT 20170604. Mrs. Prof and I finally went through the documentation and DVD for the Spinal Cord Stimulation therapy device they wanted me to consider having implanted in order to control my back pain, in preparation for my spine doctor's appointment tomorrow afternoon. After reading the docs and watching the propaganda DVD, I've determined that it'd be pretty damn useless for my right side pain. I quote:

Quote

However, there are a few limitations, which your physician can describe. For instance, you should not charge while sleeping or use while driving.

That rules it out for my main complaint, which is the spinal pain that reaches through my hip down my leg to my right foot. I can't drive because of that. Any device that I can't use while driving makes it a lump of worthless electronic crap.

However, there is a chance that it might work on my left side back pain. Anything that would help me be able to do household chores would be welcomed by Mrs. Prof., and would be a godsend for me when it comes to being able to cook again.

Now, I'm supposed to be able to "test drive" (heh) the device without having it implanted. If it gives me at least 50% pain relief, then it's considered a success. I don't understand that part, but I would probably still be taking my hydrocodone and Topamax along with it. I may learn more tomorrow. We shall see.

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Still a bit chilly this morning, but not as bad as previous days. I'm more worried about the lack of fluids/electrolytes making me dizzy. Had that happen once last night. Took about 48 oz. of Gatorade tea to get me feeling normal again.

I'm down to just the lemon-lime Gatorade. You'd think that it would blend well with lemon tea. Not really. The orange Gatorade wins that award.

I have mixed feelings about Gatorade. It was developed as a hydrating agent for the University of Florida Gators football team, way back when (hence the name). However, if the Longhorn Network's ads are correct, it was developed by a graduate of the University of Texas at Austin. That's almost as bad as a UT-Austin grad working for Texas A&M. Almost.

Screw it. I'm going back for more Gatorade tea. And coffee, if I can carry it.

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39 minutes ago, ProfessorTomoe said:

5:56 p.m. CDT 20170605.  Hoo boy. I have just had my follow-up with my spine doctor. It did not go well. More later.

Prof...stop that!  You're supposed to be getting better.  It sez so right here in the script!

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2 hours ago, Vorlonagent said:

Prof...stop that!  You're supposed to be getting better.  It sez so right here in the script!

Sorry. It was an interrupted post. I wasn't feeling good, so I had to lie down. Okay, let's get this bugger started again.

9:15 p.m. CDT 20170605. Hoo boy. I had my follow-up with my spine doctor earlier today. It did not go well. No, I didn't get diagnosed with any malignant disease or anything like that. It just went in the direction that made me glad I'm not going to be seeing this particular spine doctor ever again.

Things started going downhill when I brought out my bottle of hydrocodone and explained to him why I had to have it filled at a different pharmacy (lousy CVS and their stupid inability to do math). Anyway, he counted out how many I had left. I told him I was on a 4x-a-day schedule. He asked why. I told him that's what he prescribed. He said, "Read the label exactly as it is written." I did, thus:

Quote

TAKE ONE TABLET BY MOUTH EVERY SIX HOURS AS NEEDED FOR PAIN

He pointed out the "as needed" part. I told him that's what I needed, and that's why I came in for an earlier appointment—because 3x-a-day wasn't working.

He then pointed out that he wrote the prescription for 110 pills for 30 days and said I'm going to come up short.

WHAT.

We'd specifically discussed the problem! Why did he do that, I wondered? Apparently, he'd intended for me to have some days where I only took 3 pills a day.

WTF WOULD YOU DO THAT FOR WHEN I SAID 3 A DAY WASN'T WORKING?

Okay, okay, let's find a solution.

There was none. He wouldn't/couldn't write me a prescription for 10 more pills to fill out the month. He wouldn't/couldn't write me a prescription for an alternative to fill in the missing days. Gee, [redacted]ing thanks, doc. His solution? Use the Tramadol I still have from my primary doctor along with a half pill of hydrocodone for two of my doses, effective immediately, until I run out and can get a new prescription filled (again, written for 110 pills (rotten [redacted])). I've already started, and I can tell that it's not getting the job done. The Tramadol wasn't working on the back pain in the first place. That's why I went onto hydrocodone. Rat bastage.

Now, moving on to the real reason why I was there—why the lumbar caudal epidural steroid injection did absolutely no good whatsoever.

He had no farking clue.

While he was mulling things over, I laid on him the pain I went through, both pre- and post-op, with as much vitriol as I could summon. Every ounce I had in my body went into describing the agony he was responsible for. You know what he did? He asked me why I thought I hurt so much.

AAAUGGHHHH.

Mrs. Prof and I went through the "drug cocktail" explanation with him, along with the glaringly obvious fact that I hadn't had any hydrocodone (or water) in over 14 smegging hours prior to getting my first fentanyl injection. We had no explanation for why the dilaudid injections didn't work. It worked when I broke my ankles. Nothing seems to work on my back except hydrocodone.

He then pulled up the report from the CT myelogram—the first time he'd personally seen it (their staff surgeon had seen it earlier). He saw some unusual stuff, like some bilateral nerve root amputation, but also thought it unusual that it would cause so much pain.

In the end, he essentially threw up his hands and referred me to a neurosurgeon and a pain management unit at the University of Texas-Southwestern in Downtown Dallas. A freaking university hospital. He said that if what he saw is the source of my pain, it's going to take some major surgery. UT-Southwestern will be able to handle it.

However, my pain management is probably going to be even more frustrating, since they're even less likely to write prescriptions for hydrocodone, he said. Wonderful.

In summary, I'm frustrated beyond hell and back. I'm tired of the pain, tired of what one reviewer of Spine Team Texas called a "WalMart approach" to medicine, tired of being jacked around on pain management, tired of being treated like I'm a damned criminal or junkie just because I need something to make the damned pain just GO AWAY ... I'm just tired. Add in a broken toe, pissing like a racehorse and drinking like a cow for a swollen foot, a phantom bruised shin, being an official fall risk, not being able to take a shower without wrapping my left foot in plastic (which didn't work today—my blue foot boot got wet through the trash sacks and got a small part of my bandages damp), not being able to talk normally because God only knows why which will be dealt with later this month at yet another specialist appointment that's already been postponed three times, including one time so I could see Dr. Smeghead today instead of last week, gut blowout diarrhea thanks to infection in my broken toe being dealt with by Augmentin, and I can't remember what else right now.

[REDACTED][REDACTED][REDACTED][REDACTED][REDACTED]

My depression has hit rock bottom right now. My self-esteem is as low as I can remember it, despite every argument I can make to the contrary. My anxiety is peaking, thanks to Dr. Crapwad's prescribing torture. I can't even remember how many days I'm supposed to go 3x on the 110 pill prescription now and how many I can go 4x. Screw math—when you're in pain, why should you have to do it?

I'm not going to mention non-medical things causing problems. No, Mrs. Prof is not one of them. She understands and has been supportive today, especially on a very screwed-up drive home. I wanted to curl up in a ball, slam my head into the ABS system, and scream at the top of what would be left of my lungs.

Okay, that's enough. I've laid enough bad vibes on you. You don't deserve any more. I thank you if you're still reading this. You shouldn't be.

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5 hours ago, ProfessorTomoe said:

Okay, that's enough. I've laid enough bad vibes on you. You don't deserve any more. I thank you if you're still reading this. You shouldn't be.

Prof, let me make a few things clear for you.

It is NOT a matter of 'deserve' in any way or form. First, I am reading this because I want to support a friend in pain. Thus, I am doing this by choice. Next, you do not deserve this, either. Health problems happen and they are not subject to our control. And unfortunately some doctors are just not as supportive of their patients as they should be. I am very sorry to hear of your trouble with yours.

I am still hoping to hear of improvement in your situation. If nothing else, your podiatrist seems competent and sensitive to your troubles. We will just have to see for the rest. Please give my regards to Mrs. Prof and tell her that we all appreciate her efforts. And take care of yourself, hard as it may be at times. This too shall pass.

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2 hours ago, The Old Hack said:

First, I am reading this because I want to support a friend in pain. Thus, I am doing this by choice.

For which I'm still eternally grateful. I should probably be looking at your Amazon Wishlist for all of the support you've given me. Shoot, I should be looking at everyone's wishlists.

2 hours ago, The Old Hack said:

Please give my regards to Mrs. Prof and tell her that we all appreciate her efforts. And take care of yourself, hard as it may be at times.

I thanked Mrs. Prof for putting up with me as she went to bed last night. It was a rough day for both of us. Gonna be a fun day on Thursday, too. I've got a pair of appointments—primary care first, then podiatrist. (The podiatrist's not going to be too happy that I got my dressing a bit wet in the shower. Not near the toe, mind you, but you can still see where it got wet.)

Mental fortitude is where I need help right now. I'm running out. Yesterday was a severe drain on what I've got left. I can only hope that the neurosurgeons at UT-Southwestern can help me bolster what little I now have.

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1 hour ago, ProfessorTomoe said:

For which I'm still eternally grateful. I should probably be looking at your Amazon Wishlist for all of the support you've given me. Shoot, I should be looking at everyone's wishlists.

At the very top of mine is you getting better. Concentrate on that, old friend. All else will follow from there.

1 hour ago, ProfessorTomoe said:

Mental fortitude is where I need help right now. I'm running out. Yesterday was a severe drain on what I've got left. I can only hope that the neurosurgeons at UT-Southwestern can help me bolster what little I now have.

I hope so, too. You have not had an easy time of it. But we can at least hope that the surgeons there show more competence and dedication than your last spine doctor did.

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1 hour ago, ProfessorTomoe said:

For which I'm still eternally grateful. I should probably be looking at your Amazon Wishlist for all of the support you've given me. Shoot, I should be looking at everyone's wishlists.

14 minutes ago, The Old Hack said:

At the very top of mine is you getting better. Concentrate on that, old friend. All else will follow from there.

I don't have an Amazon wishlist, but I'll start one just to put your good health on it.  Keep fighting the good fight, Prof.

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3 hours ago, The Old Hack said:

At the very top of mine is you getting better.

Hmm ... I wonder if that qualifies for Amazon Prime shipping ...?  ;)

3 hours ago, The Old Hack said:

But we can at least hope that the surgeons there show more competence and dedication than your last spine doctor did.

That would not be difficult. I just hope they don't have an "assembly line" or "holier than thou" attitude about their work, of which Spine Team Texas and Dr. [Redacted] had both, IMHO.

3 hours ago, Yzjdriel said:

I don't have an Amazon wishlist, but I'll start one just to put your good health on it.  Keep fighting the good fight, Prof.

Much obliged. I just hope I don't have to fight against UT-Southwestern's pain management department. I swear, if I hear the word "biofeedback" used once, I'm putting on my boxing gloves. ;)

BTW, I might as well post the report from the CT scan part of the CT myelogram. I can't remember if I ever posted the whole thing. For anyone who's interested or who is of a medical bent, here it is, for your edification:

Quote

Study Result

IMPRESSION:
Multilevel degenerative changes and disc disease, as detailed above, most
pronounced at L3-4 and L4-5.
Borderline central stenosis at L2-3 with mild central stenosis at L4-5.
Multilevel foraminal stenosis appears most pronounced at L2-3, L3-4, and L4-5.
Amputation of bilateral L2, L3, and L4 nerve root sleeves.
Partial effacement of the bilateral L5 nerve root sleeves.
Partial loss of lordosis.
Degenerative changes at the sacroiliac joints.
IVC filter.
Mild atherosclerosis of the abdominal aorta.

Narrative
PROCEDURE: CT SPINE LUMBAR WO CON
INDICATION: Back Pain
COMPARISON: None available
TECHNIQUE: Contiguous axial CT images through the lumbar spine after the
separately performed percutaneous administration of iodinated contrast into the
thecal sac. Coronal and sagittal reformats. Dose reduction technique utilized to
decrease the dose to as low as reasonably achievable.
FINDINGS: There are small rudimentary ribs at T12. The patient has an IVC filter
with apex at L2-3. There are atherosclerotic changes of the abdominal aorta.
Prior cholecystectomy. Prior gastric surgery.
Degenerative changes and sclerosis at the sacroiliac joints. No recent fracture
demonstrated. Partial loss of lumbar lordosis. No subluxation. Minimal apex left
curvature of the lumbar spine the coronal plane.
T10-11: Facet arthrosis more pronounced on the right with mild ligamentum flavum
thickening. No significant central stenosis.
T11-T12: Mild facet arthrosis and ligamentum flavum thickening. Mild uncinate
hypertrophy. No significant central stenosis.
T12-L1: Mild facet arthrosis and ligamentum flavum thickening. Minimal disc
bulge. Mild uncinate hypertrophy. No significant central stenosis.
L1-2: Mild facet arthrosis and ligamentum flavum thickening. Mild uncinate
hypertrophy. No significant central stenosis.
L2-3: Mild to moderate facet arthrosis and ligamentum flavum thickening.
Uncinate hypertrophy. Mild circumferential disc bulge which contacts the
anterior descending nerve roots in the lateral recesses. Midline AP thecal sac
10-11 mm. Amputation of the bilateral L2 nerve root sleeves. Bilateral foraminal
stenosis which is not well evaluated.
L3-4: Mild to moderate facet arthrosis and ligamentum flavum thickening.
Uncinate hypertrophy. Mild disc bulge. Midline AP thecal sac 11 mm. Amputation
of the bilateral L3 nerve root sleeves. Bilateral foraminal stenosis which is
not well evaluated.
L4-5: Minimal disc space collapse. Moderate left and moderate-severe right facet
arthrosis. Ligamentum flavum thickening. Uncinate hypertrophy. Moderate disc
bulge which contacts the anterior descending nerve roots in the lateral
recesses. Thecal sac measures 9.5 mm midline AP. Amputation of bilateral L4
nerve root sleeves. Bilateral foraminal stenosis which may be severe, which is
not well evaluated.
L5-S1: Mild disc space collapse. Mild to moderate facet arthrosis. Mild
ligamentum flavum thickening. Uncinate hypertrophy. Mild circumferential disc
bulge. Midline AP thecal sac 11 mm. Partial effacement of the L5 nerve root
sleeve contrast. Bilateral foraminal stenosis which is not well evaluated. No
amputation of the S1 nerve root sleeves.

Maybe someone here can make some sense of this. I see stenosis, amputation of nerve root sleeves, and so on, and it makes me think there's gotta be something they can fix.

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20 hours ago, ProfessorTomoe said:

I should probably be looking at your Amazon Wishlist for all of the support you've given me. Shoot, I should be looking at everyone's wishlists.

Heh.  Maybe TOH can let the rest of us hit his wish list on your behalf.

20 hours ago, ProfessorTomoe said:

Mental fortitude is where I need help right now. I'm running out. Yesterday was a severe drain on what I've got left. I can only hope that the neurosurgeons at UT-Southwestern can help me bolster what little I now have.

I'll send whatever support your way I can.  I've seen some awfully good medicine come out of universities.  Here's hoping yours is full of the best, brightest, and most experienced!

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5:28 a.m. CDT 20170607. I haven't received the referral to UT Southwestern yet. Not surprising, since it's only been two days (three, once the sun comes up), but I still need to contact Spine Team (Urgh) Texas once more to get the phone numbers for whom I'm being referred to. It'll probably be my last contact with the group.

Meanwhile, I'm suffering the effects of my nighttime dose of hydrocodone being cut in half. I've woke up with my back in nasty pain and with the pins in my broken toe causing significant hurt. Tramadol is a poor substitute for half of a 10 mg hydrocodone pill. What's worse is that this screws with my serum level. My body's been used to 10 mg 4x a day, and now it's only getting it 3x a day. It isn't liking the dosage decrease. I took a full pill at around 3:30 a.m., but the pain is still not as relieved as it was with the 4x a day regimen.

This is my last day on Lasix (yay!). Likewise, it's my last day on Augmentin. I get to go to the doctor and get my edema checked tomorrow. It's improved to the point where my foot fits in my regular shoe again. The doctor will also be checking my bloodwork to see if my white cell count has improved and if I've still got myelocytes in my blood. He's also going to look at a sore spot that's been on my right ear for months now and just won't go away. I hope it's a simple bedsore. Finally, I'm going to talk to him about Dr. [Redacted] at Spine Team (Bleaugh) Texas, since the doctor said he'd call my PCP and "coordinate" the ½ hydrocodone/Tramadol situation with him. I will have words with him about that.

Seeing the podiatrist almost immediately after seeing my primary doctor. He'll probably just re-wrap my foot, but hopefully not without giving it a good cleaning first. Mrs. Prof says it's gone to Funkytown and come back worse for the wear (read: smell). Don't blame me—I'm not supposed to get the thing wet! Anyway, I think that's all he's going to do. I doubt he's going to pull the pins already with it still causing this much pain. He's also going to hear the story of Dr. [Redacted] at Spine Team (Yuck) Texas.

One thing I could use some advice on: how to take a shower with a foot in an orthopedic shoe. Our last attempt at waterproofing was less than successful, even with two garbage bags wrapped around it and the outer layer sealed to my skin with waterproof tape. I don't know if I'm leaking from the top or tearing it from the sides or bottom. If anyone has a solution for this, I'd really appreciate the help.

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On 6/1/2017 at 6:00 AM, CritterKeeper said:

 N=1 but maybe a sign your bruises taking a similar path isn't all that unusual, FWIW.

N++, I've had bruises move down my leg.  And in once case down my arm.  Still, would have someone with paper on the wall saying "Dude is a Doctor" have a look at it if they don't go the freak away.

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20 hours ago, ProfessorTomoe said:

Much obliged. I just hope I don't have to fight against UT-Southwestern's pain management department. I swear, if I hear the word "biofeedback" used once, I'm putting on my boxing gloves. ;)

To the nine hells with boxing gloves.  Go for one of these:

I_0210.jpg

Fig 34 looks like It might be a Good Thing.  Of course, the spikes on 32 have their charm. 

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14 minutes ago, mlooney said:

To the nine hells with boxing gloves.  Go for one of these:

I_0210.jpg

Fig 34 looks like It might be a Good Thing.  Of course, the spikes on 32 have their charm. 

Figs 31 and 34 would cause damage to your hand if you struck anything more solid than another human (such as a wall).  32 appears to be the best option for both damage and safety.

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Ooh—new development. The bruising down my right shin has suddenly started itching and turning red. No swelling. It's just going from purple to red in the center section of the bruise. No idea if this is a good or bad sign. I'm doing everything I can to avoid scratching it.

EDIT: I take that back—it does feel slightly swollen. My primary doctor's going to have a blast with this thing tomorrow.

Edited by ProfessorTomoe
Swelling!

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2:24 p.m. CDT 20170607. Stage one complete—I just received confirmation that my referrals have been faxed to UT Southwestern. I've got a phone number for the neurosurgeon department, but only a general referral number for the pain clinic. Not sure what the deal is on the latter, nor if it bodes ominous or not. I was told by Spine Team (Good Riddance) Texas that I should hear from UT Southwestern in a couple of days, which would put things around this Friday or possibly Monday of next week.

I don't know how I'm going to time out taking a shower for tomorrow's appointments. Mrs. Prof has a conference call from 9am to 10am, and I've got to be at the first appointment at 10:40. We'll probably do the early morning shower derby again, since I tend to wake up around four or five in the morning—earlier, now that I'm on half a hydrocodone at bedtime.

The leg's not as itchy as it was earlier, but there's a bit of a rise where the obvious spotty bruising had been. Puzzling. I hope my PCP doesn't put me back on Lasix for it. I can't take another round of that stuff. Made me feel horrible.

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@The Old Hack - Thank you, thank you, thank you, thank you! Your gift from my Amazon Wishlist arrived, and it was more than expected! The product description for the Saag's Bistro Bockwurst said it was a three-pack, but they sent four packs! Now, our IndyCar Wurstfest this weekend will be extra special, thanks to you! :)

If I can ask, do you cook Weiss Bockwurst for yourself? If so, how do you prefer to cook it? Pan fried? Boiled? @mlooney, you might want to jump in here on this one. Here's a link (pun intended) to the product:

http://www.saags.com/products/saags-bistro-bockwurst/

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12 minutes ago, ProfessorTomoe said:

@The Old Hack - Thank you, thank you, thank you, thank you! Your gift from my Amazon Wishlist arrived, and it was more than expected! The product description for the Saag's Bistro Bockwurst said it was a three-pack, but they sent four packs! Now, our IndyCar Wurstfest this weekend will be extra special, thanks to you! :)

 

Good! I hope the cars will live up to it. :) (I am still amused at the low-carb Hondas you told us about recently. At least, I am assuming that their carburators kept exploding because they were low-carb.)

I am not much of a cook but I do know that good food is a great balm for the soul. Hope you will have a good weekend!

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1 hour ago, The Old Hack said:

(I am still amused at the low-carb Hondas you told us about recently. At least, I am assuming that their carburators kept exploding because they were low-carb.)

Funny. :)  No carburetors in IndyCar racing—direct fuel injection with dual turbocharging only. You're thinking the bumper cars they use in NASCAR. They're stuck in the era of carburetors, if memory serves.

The Hondas at the Indy 500 were having full-blown (pun intended) kablammo major engine failures. The rumor was that Honda had asked its customers whether they wanted a reliable but slightly slower engine for the race, or a faster but less reliable engine. The teams supposedly said, "fast, please." They got what they asked for.

Honda has been reliable at just about every road course this year. They've been pushing the envelope on the two ovals they've run (Phoenix and Indianapolis). Texas Motor Speedway is a 1.5 mile high-banked tri-oval, where they run 600 kilometers (yes, kilometers) for the race. It's going to be very interesting to see how the Hondas hold together over the shorter distance.

So, yes. I do hope my whole family will have a good weekend!

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Before I finally put my mother in an assisted living facility, I had home health services that would come in three times a week and help my mom shower and get her medicines.  This was covered by her insurance.  Is there a service that could help you bathe and regularly change the wrappings on the leg?

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